https://getpalliativecare.org/
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Filed under: General Problems
I and my sister live in NY, and I was told by the Palliative care Physician Assistant that they do not help with pain management. Very disappointing/maddening! My sister is undermedicated and does not get out of bed most days now. She had pneumonia in July, then Sepsis in August, and was sent from the hospital to a sub acute in-patient care unit where the dr wanted to TAKE HER OFF her pain medication…, saying she was on an extremely high dose (two 30mg, and one 15mg oxycodone per day, which was barely touching the pain – I was mortified, had to get case mgr involved) she felt too sick to go thru trying to find another facility…. it felt like we were in a terrifying twighlight zone!!! She was in there with a picc line & on 2 different antibiotics for 6 weeks…, just got out on Oct. 18th, but cannot do much, can barely eat anything because of the relentless pain (mostly abdominal)
She is scared to ask her Rheumatologist, who is the prescriber) for an increase, even after all these added health problems(because about 2 years ago the Rheumatologist gave her the 15mg as an increase -she was on only the two 30’s per day then). My sister is struggling with this because it can’t go on much longer, but because also she does not want her doctor to be targeted by DEA either…. this Rheumatologist is the only dr who seems to truly care about my sister…, but when it comes to the pain meds, they all seem too scared to increase doseage…
Btw, has anyone else noticed how much less effective these meds are since Obama, and the change in the formulary? We can only get generics, or now they are labeled: ‘substituted for’….?