We have the best healthcare system in the world ?


Arachnoiditis is inflammation of the arachnoid, one of the membranes known as meninges that surround and protect the nerves of the central nervous system, including the brain and spinal cord. The arachnoid can become inflamed because of adverse reactions to chemicals, infection from bacteria or viruses, as the result of direct injury to the spine, chronic compression of spinal nerves, complications from spinal surgery or other invasive spinal procedures, or the accidental intrathecal injection of steroids intended for the epidural space.[1][2] Inflammation can sometimes lead to the formation of scar tissue and adhesion that can make the spinal nerves “stick” together. This can be extremely painful, especially in last stage adhesive arachnoiditis.


These are the posts I see and it is unbelievable. Note the character assassination from the physiatrist. This Arachnoiditis patient is suffering severe neurological problems as a direct result of injury and they are blaming the patient! I can’t tell you how many times I have seen similar behaviors from interventional pain docs.

Message sent from harmed Arachnoiditis patient this am:

Since my umpteen nerve blocks, I have gone downhill in no time, especially the last couple of months. My symptoms of weakness are very rt sided from top to toe. Last summer I woke up one morning and my rt eye was half closing and rt side of mouth drooping. CT scan ruled out stroke or TIA, however that side continues to get weaker and weaker. I dont really have neck pain so not sure why my rt arm over a long time continues to weaken. There is numbness at times in my fingers. Sometimes my rt arm hangs dead by my side and as I think I mentioned, the hand is clawing, locking and turning inwards. But it confuses me as I am not totally sure it is Arachnoiditis and pls do not let it be the beginning of crps . So many of us have ended up with crps. My rt foot is also turning inwards and downwards with toes that are constantly cramped downwards. And yes, at times when my nerves are really acting up, my head starts bobb up and down. One time my eyes rolled back and I thought I was having a seizure. All these symptoms are worsening and to then hear from my docs that it is volitional when it is not, bothers me to no end. They royally screwed up and are now engaging in utter character assassination in order to protect each other. You should read the reports – it is so clear what they are doing. I am hoping that the new doc I am hoping will help me will see through these lies. I managed to get my hands on an ER report by a wonderful female dr who looked after me a whole day in ER wrote completely the opposite in her report and that she had witnessed these spasms and myoclonic jerks in arm and leg several times and that I did not seem overly anxious or having a panic attack and that I was coping extremely well. I was then seen by a neurologist and she is the one who is writing that it is all volitional. I will report the dr who gave me all the blocks but first I have to secure consistent help from someone who is ethical and caring enough to take me on as a patient. This doc with all the blocks recently opened up a pain clinic in town, the one and only, so I can understand her motive behind the harassment. I met with my physiotherapist last week, not for therapy, but just to talk and she couldn’t believe what had happened to me plus said that she has heard similar stories of patients whose condition(s) worsened after treatment at the pain clinic. How I wish I knew then what I know today. How could I have been so stupid that I trusted that drs follow the Hippocratic oath of doing no harm. The pain clinic only sees people for three months I believe and then out the door. But you can imagine what harm they can do in those three months by invasive treatments all for the mighty $$$$s and then the patients are left to fend for themselves. It is criminal. Anyways, much love to you Terri and I hope you will hang in there too.

Just one more thing…the neuro referred me to a physiatrist who said, “are you sure you didn’t suffer emotional or physical abuse as a child”..”when was the last time you laughed”…..I walked out.

2 Responses

  1. I know exactly what you mean, I actually went to 7 different doctors in 5 years before I found one that believes me. I did see a neurologist that said that my only problem was that I had carpal tunnel in hands. I asked him if that were the case then how can it effect neck, back and legs. This moron just wanted to preform a unnecessary sugary on me. It a bunch of BS how supposed medical professionals can get away with it all. I am truly discussed with the lack of professionalism of some doctors, I get better service at McDonald’s.

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