4 Responses

  1. It’s finally happened to me. After 20 years with CRPS from a crush injury to both legs and feet my primary told me that in May his medical malpractice liability insurance won’t cover him if he continues to prescribe Opioids. I knew this could happen, but I was always praying for a miracle until it did. My legs/feet feel like someone has poured burning acid on them. I have been on everything (failed nerve blocks, all types of Opioids, 2008 a failed Spinal Cord Stimulator Operation, etc.) T

    The only thing that ever worked was 150 mcg of GEL RESERVOIR FENTANYL patches. Last Oct. they discontinued them in favor of ADHESIVE MATRIX patches which don’t work past Day 1 because the Fentanyl is so mixed in with the gummy, sticky adhesive, it’s poorly absorbed by the skin! I live in a teeny town of 730 people and my primary gave me names of 3 Pain Clinics. After reading pain patients blogs, and that this one pain clinic doctor who treats CRPS WITH KETAMINE AND STEROID SHOTS, I AM TERRIFIED! Ketamine isn’t recommended for CRPS because it’s only 30-40% effective, it’s for short-term pain and causes hallucinations, memory loss, seizures, etc.

    CPP’S say the steroid shots can cause another painful condition called ARACHNOIDITIS. My primary is in a bubble and thinks these doctors will fix me up and prescribe my Fentanyl. Not from what I’ve read.

    I’M ASKING YOU STEVE AND ANY OTHER PERSON WHO HAS CRPS TYPE 2 THAT FEELS LIKE BURNING ACID HAS BEEN POURED ON YOU—- IS THERE ANYTHING OUT THERE THAT COULD HELP ME AND THIS PAIN??? I DON’T WANT TO HAVE TO KILL MYSELF! CAN ANYONE HELP ME???

    • Without recommending them, even if I was a doctor, if you can, investigate Magnesium, antihistamine and amitriptyline. Some foods and even vitamins make me more sensitive. Vitamin-C in making me healthier makes me feel the burn from canal stenosis more, eggs as well. I have dealt with bloating and poor digestion/bathroom issues, rather severe, successfully with chewing fennel seed. God bless you.

    • Not TOO MUCH salt, not zero, but not too much, zero monosodiumglutimate (MSG), not too much sugar, research low glycemic diet.

    • Cannabis
      Kratom
      Poppies (grow them)
      Google Dr Tennant and his neuroinflammation protocol
      Even if you fine a fentanyl prescriber
      They are unlikely to be around long enough to help you fir very long.

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