The PUBLIC FACE of fibromyalgia that few sees ?

PLEASE SHARE WOULD LIKE TO GET IT TO Lady Gaga
Lady Gaga…
You need to bring awareness to the world outside those of us who understand your journey, your limitations and pain! Those of us who suffer from intractable/chronic pain day in and day out, 24/7, 365 days a year!

Because of your celebrity, you can reach a huge sector of the population!
This would be instrumental in changing the misconceptions, and false narrative frenzy of that surrounds this community by this, “Opioid Hysteria”!
As you know, intractable pain wreaks Havoc on your body, mind, and soul!

Lady Gaga, many are dying due to suicide! Their pain levels are exceeding what is humanly manageable
without the proper medications!!! Without these tools, (our medications) that give us a sense of relief from the torturous, agonizing, wrenching, excruciating, aching, burning, never ending, incessant, stabbing, unbearable pain even if minimally…

Are we not allowed to assemble of quality in our lives? Of functionality?
Which is what these medications provide!

Lady Gaga, since the implementation of the 2016 guidelines my life has declined 98% and I’m not exaggerating!
I used to be vivacious,
I used to work,
engage in church,
Sports out in the community!

I used to be a special education advocate, advocating for children with autism!
I helped a lot of children receive services that enriched and bettered their lives!
I made a difference Lady Gaga even if just a small sector of individuals!
I made a difference!
Isn’t that what life is about?
About giving back?
Making a difference?
You can make a big difference!
I’m asking that you do this for thy fellow man, that is broken, hurting, whose rights are being violated in every sense of the word!

The American with Disabilities Act is not being followed our very own government is breaking the law and Justice needs to be done!

Media is selling this false narrative equating us to drug addicts!
They are not adhering to their preamble their code of ethics which includes but not limited to being the voice for the voiceless!

A journalist is supposed to be seeking truth and must avoid conflicts of interest whether the conflicts of interest are real or simply perceived! Journalist always must strive for accuracy in everything they do!
Deceiving or misinforming the reader, deliberately or accidentally, is one of the worst sins in journalism!
Factual errors and conflicts of interest erode and cripple Publications credibility as a source of news and opinion. Therefore, a journalist needs to follow a code of ethics to preserve and to build their Publications credibly.
The code of ethics is an ever-evolving reference document with which every staff member should be knowledgeable. The editor of the publication retains the final judgment on all ethical questions, and ultimately, the editor shoulders the consequence of unethical practices.
MAINSTREAM MEDIA IS NOT ADHERING TO ETHICAL JOURNALISM….

So Lady Gaga we are already so compromised and challenged you are in a different Arena so you have no clue probably how desperate, how lonely how isolated so many of us feel! Every day, I get calls from individuals who are on the edge of killing themselves! Every single day! I talked to them and tell him to please hang on justice has to come! Will you help us get Justice or at least awareness Lady Gaga? Pay it forward? Before I have to put another name on my all too overwhelming incredibly extensive suicide due to pain list?

functionality and quality of our life! Without that? Pain is relentless, pain is cruel, it doesn’t discriminate it could happen to you! Anyone out there outside of the chronic pain community Miss just one car accident away, one surgery one illness away potentially from living the rest of their days in disabling, the torturous pain! Literally hell on Earth! We did not ask for this, who would? Yet this is our walk this is our journey! Why, are we being violated and shunned disrespected and ignored

It is getting to be a regular theme here in the chronic pain community to hear of another chronic pain patient killing themselves.
Because they have been abandoned or tapered by their doctors the pain becomes all too overwhelming, all to consuming, depression and the thought of just one more hour, one more day, even one more minute is just to much to bear… I can speak of this because I have been there! Not just once or twice but on many occasions! What has stopped me from doing it? My belief…
This may sound crazy and I don’t care if it does! For the past 10 years, I’ve been having a reoccurring dream! Where God comes to me and tells me to hang in there!
You see Lady Gaga almost now 8 years ago… I was told I only have 3 months left to live! I weighed approximately 87 lbs then and I’m 5′ 7 and 1/2, had a surgically inserted port in my chest receiving intravenous nutrients 12 to 24 hours a day. For 8 + years this. After hearing that news I was stunned, 3 months, 3 months! Wow, that was hard to absorb! Approximately, a week later I found out that my daughter-in-law was pregnant! My first grandbaby was on his way! I told myself that I was not going anywhere. I was going to see my first grandchild. Long story short my beautiful Jeremiah was born. When he was 3 months, I knew he had autism! I told myself I am not going anywhere until I know he receives all the services humanly possible. To make him into the man that God truly intended him to be!
Because early intervention is the key! It makes all the difference in the world! That means I have to advocate for him! Lady Gaga guess what? I can’t do it! My grandson is a statistic of this opioid epidemic/crisis… the collateral damage aspect that no one touches on! Which is going to be exponentially worse than anything that is a curd in our history this will be irreversible and this country will never be the same! Broken families! Destroyed lives! Loss of life! Of livelihood, substandard living due to not being able to work any longer! Social Services will be overwhelmed with children whose parents can no longer take care. The family unit will be destroyed as we know it! The American dream…
that white picket fence will be abolished! And that is just the tip of the iceberg! All because they do not have the medication that once allowed them to work, to raise a family, to engage and interact in society now gone!
I’m asking, actually I’m pleading with you 2 bring awareness I’d love to help you in this endeavor have already reached out to a couple of celebrities trying to incorporate a message
#Ladygaga
#GIVEPAINAVOICE #All4OneAndOne4All
#unitedwestanddividedwefall #suicideDue2Pain

One Response

  1. The cause and potential cure of fibromyalgia can be found in a shortened form on the video by that name on http://www.doctorsofcourage.org/videos/. A longer version is available by DVD on that site. If people are willing to learn and change their lifestyle and cleanse the cells of the body, fibro doesn’t have to be.

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